Sources
These are the sources the articles on this site rest on, listed under the heading and the article that use them. Each was opened and read on the date shown, and each entry says how much of it was read. The abstract is the summary at the start of a paper.
This page is not medical advice, and a link here is not an endorsement. A source is listed because an article used it, not because anyone should follow what it says. For anything about your own health, ask your own doctor.
"Medical journal paper" means it was published in a medical journal. "Patient organisation page" means a page from an organisation for people with the condition.
Lazy or limited?
If they can't tell lazy from limited, how can you?
- Patient organisation pagePostural Orthostatic Tachycardia SyndromeDysautonomia International website. Undated page.Read 12 November 2026. Sections used: "Signs and Symptoms" and "Is POTS Caused by Anxiety?". The journal papers the page cites were not read.
- Patient organisation pageChronic Fatigue in Ehlers-Danlos Syndrome Hypermobile Type and Hypermobility Spectrum Disorder (for Non-experts)The Ehlers-Danlos Society website. By Hakim, De Wandele, O'Callaghan, Pocinki and Rowe, adapted by Guscott. Revised December 2019.Read 12 November 2026. Read in full. It is a plain-language version of a 2017 peer-reviewed review; the review itself was not read.
- Medical journal paperSources and consequences of self-doubt in patients with Ehlers-Danlos syndrome: a qualitative study in Europe and North AmericaHalverson, Vershaw, Francomano and Doyle. BMJ Open, December 2025.Read 12 November 2026. The abstract, the strengths and limitations, and the opening of the introduction.
- Medical journal paperAutoimmunity and postural orthostatic tachycardia syndrome: Implications in diagnosis and managementAboseif, Bireley, Li, Polston and Abbatemarco. Cleveland Clinic Journal of Medicine, July 2023.Read 12 November 2026. The abstract, key points and the sections up to "Red flags and mimics". The later sections were not read.
- Medical journal paperCharacterization of Mast Cell Activation SyndromeAfrin, Self, Menk and Lazarchick. American Journal of the Medical Sciences, 2017.Read 12 November 2026. The abstract and the opening of the introduction only.
- Medical journal paperAAAAI Mast Cell Disorders Committee Work Group Report: Mast cell activation syndrome (MCAS) diagnosis and managementWeiler, Austen, Akin and others. Journal of Allergy and Clinical Immunology, 2019.Read 12 November 2026. The title page and the sections on symptoms and on conditions that are not diagnostic of MCAS, read from the copy on the AAAAI's own website.
"You look so well": the compliment that lands wrong
- Medical journal paperPostural tachycardia syndrome: multiple symptoms, but easily missedKavi, Gammage, Grubb and Karabin. British Journal of General Practice, June 2012.Read 12 November 2026. The relevant passages, found by searching the full text. Not read start to finish.
- Medical journal paperExperiences of living with postural tachycardia syndromeWaterman, Opie, Waterman and Langdon. Chronic Illness, Published online November 2021.Read 12 November 2026. The abstract, the start of the introduction, and the passages on visibility.
- Patient organisation pageChronic Fatigue in Ehlers-Danlos Syndrome Hypermobile Type and Hypermobility Spectrum Disorder (for Non-experts)The Ehlers-Danlos Society website. By Hakim, De Wandele, O'Callaghan, Pocinki and Rowe, adapted by Guscott. Revised December 2019.Read 12 November 2026. Read in full. It is a plain-language version of a 2017 peer-reviewed review; the review itself was not read.
Plans and unpredictability
Why Tuesday was fine, but Wednesday is a crisis
- Medical journal paperExperiences of living with postural tachycardia syndromeWaterman, Opie, Waterman and Langdon. Chronic Illness, Published online November 2021.Read 12 November 2026. The abstract, and the passages on fluctuation and unpredictability, found by searching the full text.
- Patient organisation pageChronic Fatigue in Ehlers-Danlos Syndrome Hypermobile Type and Hypermobility Spectrum Disorder (for Non-experts)The Ehlers-Danlos Society website. By Hakim, De Wandele, O'Callaghan, Pocinki and Rowe, adapted by Guscott. Revised December 2019.Read 12 November 2026. Read in full. It is a plain-language version of a 2017 peer-reviewed review; the review itself was not read.
- Medical journal paperA qualitative study of pain and related symptoms experienced by people with Ehlers-Danlos syndromesSchubart, Mills, Francomano and Stuckey-Peyrot. Frontiers in Medicine, January 2024.Read 12 November 2026. The abstract and the passages on fluctuation, found by searching the full text.
Why they cancel ten minutes before you leave
- Medical journal paperPsychosocial Influence of Ehlers-Danlos Syndrome in Daily Life of Patients: A Qualitative StudyPalomo-Toucedo, Leon-Larios, Reina-Bueno and others. International Journal of Environmental Research and Public Health, September 2020.Read 12 November 2026. The abstract and the passages on social plans, found by searching the full text.
- Medical journal paperExperiences of living with postural tachycardia syndromeWaterman, Opie, Waterman and Langdon. Chronic Illness, Published online November 2021.Read 12 November 2026. The abstract, and the passages on fluctuation and unpredictability, found by searching the full text.
What to say, and what not to
"Have you tried…?": why advice lands so hard
- Medical journal paperSymptom burden, quality of life, and diagnostic journey of people with postural orthostatic tachycardia syndrome, Australia, 2021-24: a descriptive patient registry data studySeeley, Wilson, Ong and others. Medical Journal of Australia, June 2025.Read 12 November 2026. The results passages, found by searching the full text.
- Patient organisation pageChronic Fatigue in Ehlers-Danlos Syndrome Hypermobile Type and Hypermobility Spectrum Disorder (for Non-experts)The Ehlers-Danlos Society website. By Hakim, De Wandele, O'Callaghan, Pocinki and Rowe, adapted by Guscott. Revised December 2019.Read 12 November 2026. Read in full. It is a plain-language version of a 2017 peer-reviewed review; the review itself was not read.
When they have no energy left to explain
- Medical journal paperExperiences of living with postural tachycardia syndromeWaterman, Opie, Waterman and Langdon. Chronic Illness, Published online November 2021.Read 12 November 2026. The relevant passages, found by searching the full text. One statement the article uses is the authors' report of earlier research, which was not opened.
- Patient organisation pagePostural Orthostatic Tachycardia SyndromeDysautonomia International website. Undated page.Read 12 November 2026. Sections used: "Signs and Symptoms". The journal papers the page cites were not read.
- Medical journal paperSources and consequences of self-doubt in patients with Ehlers-Danlos syndrome: a qualitative study in Europe and North AmericaHalverson, Vershaw, Francomano and Doyle. BMJ Open, December 2025.Read 12 November 2026. The abstract and the passages on communication, found by searching the full text.
Want everything published on a condition?
These open a live search of PubMed, the US National Library of Medicine's index of medical papers. The results are not chosen by this site, and a link is not a recommendation to follow anything in it.